Lily appears to have suffered not one but two fainting spells at school. Fainting, Jim? Like losing consciousness fainting? I don't think so, although the details are a skosh sketchy. While an aide was putting Lily on the potty at school, her legs went limp, and she became very pale, and she fell forward. The aide caught her. They gave her some juice and tried her on the potty later and she did it again, this time falling sideways. Later she was her normal bubbly little non-pale self (olive complected. . . like her mother *insert eye roll). All of this occurred about an hour after she had eaten a snack, and various possible explanations for this were offered by the school nurse (blood sugar type stuff, etc) but one thing that Leslie (the woman trying to kill me with bad beef) and I wanted to investigate (or eliminate) was the possibility of seizure activity.
Apparently seizure activity is much more common in autistic kids than their typically developing peers. I first became aware of this after reading a blog by Karen at Solodialogue about her child's recent EEG. Read that post. . . >>Here<<
Anyway, after following Karen's adventures we considered approaching our new fancy autism specialty doctor-type guy about having an EEG done. But I forgot when we first visited him. Then I forgot after he called us for a follow up. But the school thingy prompted me to do so. I emailed him, and he ordered an EEG and his nurse is, even as we speak. . . er, read. . . scheduling a consult with a pediatric neurologist to occur sometime after the results come back.
I'm strangely unfazed by all of this. I can't explain why, exactly. It all reminds me of the process through which we uncovered her autism, and therefore received services. Maybe she's having seizures. . . if so, at least now we'll know that, and be able to treat them. I don't know. Like I said, I can't explain my unfazedness.
We have a history with medication. Stimulants to help her focus better. It was a debacle. Four medications in, and about 8 of her 34 pound starting weight (I'll have to double check that) down, we stopped. It changed her completely, and not for the better. She was angry coming off meds, she wouldn't eat anything, she hated music, it was really really shitty. I'll blog about that at some point just to get it "on the record" before I completely forget all the details of that particular suckfest.
I digress. We have a history with medication, but apparently there are non-stimulant medications, used for treating EEG irregularities (seizures) that also help improve the symptoms of autism in some cases. In a lot of cases, actually. And while Lily may not have the right set of criteria to qualify as a "good" candidate for that medicine, it occurs to me that even without that particular silver lining, I would rather know that she is having seizures and be able to get her appropriate treatment, than be blissfully ignorant of them and NOT get her treatment.
|see how happy we are? wtf is going on with my hair?|
I've already read through some of the information about the test. Things like:
- During the test, your child should lie as still as possible.
- At times, your child may be asked to breathe fast, to look at flashing lights, to try to sleep.
- Your child will be asked to lie down on a bed.
And little tips to help out like:
- The best way to help your child stay calm is for you to stay calm.
- The most important role of a parent during the EEG is to help your child stay calm and relaxed.
And those sorts of things make me think things like:
- Are you fucking kidding me?
- Do you have ANY idea what you're saying?
- This may be somewhat "stressful" for all parties.
So I've called ahead because there is also a section on the information sheet that asks me to call ahead if I feel my child has any "special needs" etc. that I feel need to be shared. And the message I left (because nobody was there to answer the phone) was essentially the following bullet points (I'm crazy for bullet-points in this blog post, apparently):
- Autistic child with ADHD
- Will not sit still for extended periods
- Will not remain calm
- Need to fill out all the paperwork in advance. I don't want any stray questionnaires harshing my stress-buzz.
- Call me and let's get this all figured out in advance.
We'll see what happens. Nothing like that has happened prior, nor since (this was a day or two ago).
My stomach feels weird. . . nerves, or bad roast beef?
UPDATE: My wife read the blog and claims she is NOT trying to kill me. Just wanted to get ONE MORE sandwich out of that package of bruised, slimey and bluish roast beef.
I said, "It's the ONE MORE" that kills you!" (not at all dramatically)
She rolled her eyes and said, "I'll throw it out."