Friday, November 18, 2011

School Pictures


Ali Dani G. over at I'm Just That Way and That's Just Me, and Lynn (I'm not really on a first name basis with her, despite calling her Lynn just now) over at (the prolixly titled) My Life as an Ungraceful, Unhinged, and Unwilling Draftee Into the Autism Army, came up with an idea of sharing the joys of special needs school pictures.  Sidenote:  I'm not positive that Lynn's blog is titled that, or Autism Army Mom, since the site address is www.autismarmymom.com.  Maybe the "title" above is actually the description of the blog, not the title itself, in which case I retract the word prolixly (which is totally a word) from the description of the title.

Anyway, the idea of the blog hop is to see the funny (though sometimes sad/frustrating) consequences of sending a school photographer to snap cookie cutter pictures of our kids, who are often pathologically incapable of sitting still, smiling on command, making eye/camera contact or in cases even repeating "cheese" predictably.

The blog hop itself has been an utter failure in my opinion, primarily because all the pictures I've seen thus far have been cuter than a bug's ear and in no way support the concept of "funny" tragic school photographs.

And in fact, my own children's pictures, far from being tragic or amusing are fucking gold!  I mean. . . look at these kids!  In an effort to support the original requirement, however, I have offered up a couple of my old school photographs to show true amusing tragedy.  But that is later.  First. . . My kids' contributions.

We'll start out with Emma, the older NT sister.  I'm relatively bummed because although I have in my office every "school picture" taken of Lily starting from about three years before she actually even attended school, I have only the last two of Emma here.  I have a zillion softball team pictures, a hundred dance pictures, but only the last two school pictures.  Meh.

The blur is my fault.  I took pictures of the pictures and then cropped them on my iPhone, so a little distortion/blurring, and maybe even tint/lighting issues are the result of that, not the ineptitude of the photographer.

So, without further adieu. . . Emma's 3rd and 4th grade pictures!


Our only issue with her third grade picture was her hair wasn't perfect and she has a much sunnier smile, ordinarily. Still, all in all. . . nailed it! (blur is my fault). (Author's note.  my wife read this blog and took offense that I said Emma's hair wasn't perfect.  Her argument seemed to boil down to this, "I WORKED on that hair!" as if that somehow equated to perfection.  I didn't say her hair was BAD. . . I said it wasn't PERFECT, now go back in the other room so we can text each other more stuff)


Again. . . come on, Emma, let that sun SHINE, baby!  But it's still a pretty good picture. Rockin' the sequins 





















Lily's up next. They used to take Spring and Fall pictures at the daycare, same school photographers. The only consistent issue with Lily's pictures appear to be her glasses. Sometimes the best pictures catch a wicked glint off the lights, but we can live with that.


Lily at 3. . . she's all chubby-lookin', like a little butterball turkey (just in time for Thanksgiving) . . . nothing a little autism won't cure.

Lily at 4. . . she's even SMILING for godsake!!


Lily at 5. . . best picture EVER!!!  (glasses were broken)


Alright. . . so, she could probably look happier in this one.  But not making any "weird" faces.  The hair is a tad mussed, but what do you expect.  Still, the expression on her face seems a long-suffering patience.  "Let's get on with this, please.  I have a juicebox waiting for me."
And finally, me.  As you'll see, things started off pretty well.  I mean, I was one damn cute kid.  Look at my gigantic 70's lapels.  You could hang glide with those monsters.  Children lost eyes on those points!  Fashion can be a sadistic mistress.
Favorite sweater.  I think you can see why.  Whatcha lookin' at, kid?  The birdie is over here.
Okay, good so far. And wait til you get a load of this. . . WOW!! This kid is one cute little bastard! Look at the eyes, the cute little smile. I'm practically melting just looking at that innocent little lamb!
Ohmygodohmygodohmygod, do you SEE this little cowboy shirt with the mother-of-pearl buttons!!! Don't you just want to pinch his cheeks and feed him????
And then eventually 7th grade happened.  And you know what?  My mom still told me I was handsome and that all the girls must be crazy over me.  Ugh!  You were such a liar, mom!  I was a goddamn train wreck.  What the hell is going on with my hair?  And those glasses?  Really??  Yeah, and as if my early teens weren't awkward enough, hmmm, how could we traumatize the near sighted awkardly skinny kid more. . . hmmmm. . . oh yeah!  Let's slap some braces on that kid, STAT!!


But the most disappointing thing about this particular blog posting isn't that my picture is the most awkward, it's that I couldn't actually find the really awkward picture that replaced this one my 8th grade year.  *shudders*  It's probably for the best, but I couldn't find the old pictures last night so my wife helped me by spelunking through the nightmare that is her office-cum-storage room, and I grabbed them on my way out the door this morning.  "You rush a miracle man, you get rotten miracles."

Wednesday, November 16, 2011

Filling in Valleys

We're having issues with Lily's eating again still. There was a brief time maybe two months ago, maybe three, that her eating actually seemed to be improving straight across the board. People at school and daycare were having some success getting Lily to eat.  We were having some success.  Now nobody seems to be having success.
Go Stillers!

My inability to get my daughter to eat really bums me out.  I think what makes her eating the "Perfect Bummer Storm" for me is that 1) she's already undersized, and 2) when she's hungry she's more prone to meltdowns/behaviors.  When she eats, I think my wife would agree, we can almost make our peace with just about anything else going on in her world.  When the bites go in and don't come back out it's like a weight is lifted off our shoulders (only to gradually crush us again by next meal time).

The last week or so she's been allowing just about anything to go in her mouth. . . then right back out again.  Oh, she chews it a few times; long enough for me to reach for the next bite, then plech. . . down the front of her shirt.

Our morning routine becomes even more problematic because we can't be as patient with her as we can during other meal times when we don't have places to be or things to do, because we want her to get a good night's sleep, but doing that means we have an hour to get her up, dressed, fed, and ready so that I can drop her and her big sister off at the daycare.

And lately our morning routine has gotten sloppier.  We put off feeding her until the last minute because it's such a frustrating process.  And that just makes compounds the problem because we know it's got to happen, and when you add the stress of needing to get out the door in a set, diminishing timeframe to an already stressful task, we're left with acceptance of failure, temper tantrums (ours, not hers), or being late to work daily.

Lily also spits.  It's her, "I'm pissed at you and I know you hate this, so I'm doing it" response to being forced to do something she doesn't want to do.  So. . . this morning, dressed in my work attire, feeding Lily until the last minute we need to get out the door, she spit a mouthful of peaches all over my shirt.  Fan.  Fucking.  Tastic!!

happier (dinner) times. . . 
I was good this morning.  Ever since her 'wrap' Psychologist told us to "put it on extinction" . . . ie. . . ignore it away, my patience level with being spit on has gotten better.  I don't know why, but knowing that ignoring the behavior is what I'm supposed to do makes it somehow easier.  That said, I was bummed and vented to my wife.  And I'm essentially just venting now.

My wife leaves early for work on Wednesdays so she can leave work to come home early in the evening and take Emma to dance.  I called her after the drop off and vented and she gave me the advice I always give her when she's in her low spots.  "She'll come back around.  She always does.  We just have to chop off the peaks and fill in the valleys and remember."

That's our little mini mantra.  We seem to overreact both ways.  We celebrate a little TOO boisterously and let ourselves get gobsmacked to heartbrokenness by subsequent setbacks.  Peaks and valleys. . . chop off the peaks, fill in the valleys, and you're left with something that approaches your new "normal".


The bright side is that, though Lily was upset at having to eat (until I set her free anyway), when I asked her if she was sad she said, "I no sad.  I'm mad!  I'm frustrated!"  We try to reinforce the labeling of those emotions with her and I think she's understanding the differences between happy/sad/mad and using them appropriately.  Because. . . she was not sad.  She was mad.

Just keep swimming, just keep swimming.

Tuesday, November 15, 2011

A Stitch in Time

I got a phone call yesterday about  mid-way through my day informing me that Lily had fallen on the playground.  Actually, the way it went down was something like this:

1:13 p.m.
"Hello, Mr. W?  This is the school nurse.  Lily fell down on the playground today.  We tried to call your wife but she didn't answer her phone."

The first thing that ran through my head was. . . 'is Lily okay?'  This was followed immediately thereafter by 'Are. . .are you tattling on my wife for not answering her phone?'

The nurse continued, "We think she's going to need stitches."

There was a long pause, during which I was uncertain what I was supposed to respond, so I went with, "What do you need me to do?"  The nurse responded that I needed to come get Lily.  I explained that my wife and I were both 30 - 40 minutes out and that we'd be there as soon as we could, but could Lily go back to class, since the last time I picked her up they had her. . . all 3'6" PDD NOS ADHD of her sitting in a chair, still; waiting until someone showed up.  That seemed like torture to me, but the nurse said, no, they were worried she'd bump her head.  Whatever.

As I was getting packed up to go, my wife called.  "I got a call from the school, what's going on?"

"Lily fell on the playground and needs stitches.  I'm going to take her to the Emergency Room at Children's," I replied sensitively (ish).

Waterworks.  Okay, possibly I could have couched my reply a hair more carefully, but I had stitches when I was a kiddo, and didn't really think it was any big deal.  I explained this . . . probably just as sensitively (ish).  It was agreed that my wife would meet us at home and we'd all go to the E.R. together.

1:45 p.m.
When I showed up to the school to pick her up she was sitting very nicely, reading a book with her visibly upset dedicated aide.  The nurse said, "Her bandage is soaked through.  I was going to change it as soon as you got here.  Do you want to see it?"

"Why?" She sorta caught me off guard.  I guess her thinking was maybe I thought the school was blowing it out of proportion because I'd asked her earlier what she wanted me to do, and I think she'd just assumed I'd  know that Lily needed to go to the E.R., instead of asking.  Maybe she wanted to prove to me that it really would need stitches.  I'm not really sure.  I continued, "I mean, I don't know what I'm looking at.  I'm relying on your judgement as to whether or not she needs to go to the E.R."

"Some parents like to see," she responded, a bit defensively.

I shrugged, "If you're changing the bandage I'll see it regardless.  Go ahead."  I felt like the whole encounter was a little "off".  Maybe it was just me, but it seemed like the nurse was ready to go to battle if necessary.  Maybe they have irate parents spitting nails about the carelessness of the playground staff or something.  I don't know, it just seemed weird.

I gather that what happened was that Lily was skipping across the pavement, and caught a toe.  She has ZERO reflexes, (like the doctor who tested them kept doing double takes when her knee wouldn't respond to the little hammer taps), and didn't try to catch herself, landed on her face, glasses jammed into her eyebrow, and the lens cut a gash into it.

She changed the bandage.  Jesus!  Okay, I'm no doctor, or nurse, or. . . whatever.  I'm not.  But in my medical opinion, she needed stitches.  Deep cut right above her right eyebrow.  Deep.  It shook me up a little.  I think I was expecting it not to be quite so deep.  Did I mention deep?  Remember when I said "whatever"?  Yeah, that was before I saw the cut.  I got it then.  I wouldn't have sent her back to class either.

Lily was a champ.  I gathered her up and we hopped in the car and drove home.  She was in good spirits.  Sometimes it's a bonus that she has the pain tolerance of Wolverine from the X-Men.  Her mother greeted her warmly, tears now long since dried up, Mama Bear mode initiated.

Emergency Rooms are ridiculous.  It's not all their fault, because people use them like a doctor's office.  My own pediatrician often sends Lily to the E.R. for stupid things like blood draws or tetanus shots, and while Children's Hospital is uniquely qualified to handle. . . children. . . sending someone to the E.R. for a 10 second blood draw amounts to killing an entire day in a waiting room while they process in the order in which the kiddos are received (or the severity, of course) sometimes resulting in an 8 hour visit for a 10-second draw.  Regardless of how you do the math there. . . stupid.

2:35 p.m.
Children's Emergency room has never failed to disappoint me not only in the duration they require my child to wait in order to receive care, but also in their lack of understanding of what the aforementioned spectral abbreviations mean for the child who is being asked to wait.  I was disappointed once more, but this time only because I expected to be disappointed, and they didn't disappoint me, so I was disappointed that I was wrong.  If you followed that reasoning, you don't need me to tell you that means Children's did a nice job.
"I want Misdowalds."

She occupied herself staring at the fish tank, 'reading' stories, or looking at the wall of bubbles.

There was only one real touch-and-go moment, when Lily pulled the band-aid off her head, exposing her cut.  I had to pin her hands and my wife had to get a nurse (who took way too long to make her way to me with a new bandage and gauze) while Lily, upset with being restrained, attempted to chew her way to freedom.  It all lasted perhaps a minute or three, tops, and there was no breaking of the skin (mine), so all things considered, we (I) made it through unscathed.

Here's something that bugged me:  She's got a deep cut on her forehead.  Do you know how many people wanted to take a look at that deep cut?  People removed her bandage and then replaced it with a new one.  I'm not a bacteriophobe, but it seems to me that maybe one person should look at it and then the next person who sees it, is seeing it because he/she is in the process of working on it.  The admitting nurse took it off to look at it.  The nurse that put the new bandage on it (because it was loose from the admitting nurse looking at it and Lily pulled it off) looked at it.  The E.R. resident looked at it.  The E.R. intern looked at it, and the doctor who finally stitched her up looked at it.  Why?  Why did those previous people look at it?  By the time we were in a room . . . at. . .

4:10 p.m.
. . . three people had already looked at it, and there were two more to go before the process would ultimately be completed.

I get that the hospital is a learning experience for the intern, so that makes sense.  I even get the admitting nurse to some extent, so she could direct us to the appropriate area of the E.R.  I don't know.  We answered a series of questions at one point enough times that my wife just rattled off a series of answers in anticipation when the next doctor/nurse would start in:  "She fell on the playground, her glasses cut into her forehead, no the glasses didn't break, no she hasn't eaten or had anything to drink since 12:10."

I added my own flavor these as they continued to grow more redundant:  "Did you talk at all to anyone who has already seen her?  I'm concerned that you don't know the answers to all these questions already.  You're aware she's autistic right?  You're aware she's had emergence issues when sedated, right?"  And so on.

Each person who learned that Lily had been sedated for surgery in the past and woke with "Emergence" issues vowed to look up in her records what the sedative du jour had been in order to avoid it this time, until the next person would arrive on the scene, also unaware of the issues.  That piece was disappointing.

Lily was more or less a good girl in the room.  We played music for her on our iPhones.  She seemed more or less uninterested in the iPad, although she did watch a little Dora on it once I connected to the wifi and pulled it up on Netflix.

They were waiting for the magical "four hours without any food or drink" to arrive before sedating her.  I hoped that meant they'd be getting her ready by 4:30 (since we'd been telling everyone 12:10 to 12:30 was her lunch), but it ended up being only about 30 minutes after that.  Lily was very hungry, and the hardest part was telling her she had to be patient.  She really didn't understand not being allowed to eat.

5:00 p.m.
The team assembled in her little room.  We gave her kisses, told her we'd be back, and they ushered us out of the room and into the waiting area again, to be summoned when they were done.  I sat on my seat, my wife sat on hers, and we produced smart phones so that we wouldn't be forced to speak to each other while we waited.

Okay, we did produce smart phones, but we also chatted, and she gave me money to go buy a bag of white cheddar popcorn from the snack vendor.  I felt guilty eating when Lily hadn't really eaten since breakfast (she only ate strawberries at lunch), but it's not like we were eating in front of her or anything.

5:35 p.m.
They gathered us back up and we returned to the room.  Lily was awake and upset, but honestly was doing pretty well all things considered.  She has a bit of a gag reflex, and she was stuffy to begin with, but with the crying she'd been doing, she threw up a bit and there were towels and wet wipes scattered across the bed.

She was connected to electrodes and the machine that goes "ping!" (or at least used to) and a lead was connected to her toe that glowed red and made it look like E.T.'s fingertip when he heals Elliot's booboo.  We stood on either side of her little bed, stroking her hair softly and telling her what a good girl she was and how brave, and eventually she fell back asleep and I retired to a comically squeaky chair that I was perpetually afraid would startle her awake.


6:22 p.m.
no response.
I attempted to engage my wife in a chat conversation from across the room.  I tweeted that bit of excitement.  She attempted to access my other daughter's electronic school records (apparently an update came while we were in the waiting room) and kept getting irritated with me because each new chat message would knock her out of the database.  I'm sure that would have been annoying.

6:47 p.m.
An hour after the procedure they brought us papers to sign and released us from the hospital.  My parents had picked up Emma from the daycare and were eating dinner with her.  I called them and they ordered food for us and were going to bring it home so we could eat.

We stopped at McDonald's on the way home and tried to get Lily, who was still plaintively croaking, "I want Misdowald's [sic]", to eat some of it with extremely limited success.  But she was coming off of a sedative that is known to cause nausea to some extent, so we weren't super surprised.

We finally got home sometime around 7, before my parents returned with Emma, and I made Lily's bed and we put her to sleep (until 1:30, when she decided to wake up for a couple hours).  Long day for the little spud.

After a fitful night's sleep, we kept her home.  My wife stayed with her and had her folks come over so she could get some work done, and catch a nap (since she was awake for the majority of the 1:30-3:30 festivities).  She was looking good, and back to her happy self.  Just another day-in-the-life.

I don't know if my expectations of emergency rooms are so low that four plus hours spent at the hospital for five stitches seems "good", or if it really is good, but saying it out loud makes me want to punch myself.  "I'm so happy it only took the E.R. four hours to stitch my ADHD daughter's head wound!"  Yeah, it sounds asinine.  But. . . I thought it seemed like they did what they could in light of the fact that they couldn't sedate her until 4:30 at the earliest.

Still, I'd like to hold off on future Emergency Room visits.  To echo the words of the intern as we checked out of the hospital, "It was nice meeting you Lily, I hope I don't have to see you again."  I laughed, but after we left I figured he probably heard someone say it.  And that person probably heard someone else say it, and so on, back to the dark ages of Emergency Room work.  Still. . . it's true.